About CRPS

The facts:

  • It can stems from a trauma of some kind. Though this is not always the case. And the word trauma can be any kind, from a needle prick, the flu,  to a fracture it’s a medical word and does not mean emotional trauma.
  • There is no cure and it is chronic meaning life long. There are some treatments, however crps is mostly likely to have a positive outcome if treated correctly within the first 3 months of onset of symptoms.
  • This is the most painful disease at the top the McGill Pain Scale and it is known Suicide disease from those that have lost their lives due to the pain from this disease or complications there of
  • Tremors, body movements and dystonia are and can be a symptom
  • It can happen to anyone at any time though it’s most common in  women around 40. Kids often get it though too like I did when I was 10. Some believe the reasoning behind the theory of children being able to recover from this disease is the surge of hormones on brain still taking shape.
  • It is not studied in medical school and less than 1% of research dollars are put towards Pain disease. This means most doctors don’t know about it, treat it or diagnose it. Some doctors claim there is actually over diagnosis. However, there is a great deal of evidence that points to the contrary.
  • There is no one official test you can only be diagnosed by exclusion Some doctors believe thermography is the best tool we have.
  • Used to be known as Causalgia when it was first documented during the Civil War. It was also known as RSD and still goes by many other names today RND, AMPS shoulder-hand syndrome, Sudecks dystrophy and many others
  •  CRPS does spread usually laterally or horizontally and occasionally diagonally. It does also spread into the organs and can cause but not limited to:
  1. Vascular and circulation
  2. Heart
  3. Urinary
  4. Gynecological (menstrual/ birthing)
  5. Gastric
  6. Syncope/ dystautanomias
  7. Kidney
  8. Liver
  9. Gallbladder
  10. Etc
  • CRPS is not the same as somataform Münchausen syndrome or conversion disorder
  • Many are often misdiagnosed and see several doctors and on average over many years just to receive a diagnosis before even attempting a treatment.
  • Treatments are medications, nerve blocks, spinal chord stimulators, transcranial magnetic stimulation, hyperbaric oxygen, immunoglobulin therapy (IVIG), ketamine, lidocaine, physical therapy, aqua therapy, psychological therapy, alternative therapies, etc.

Resources

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